An edition of The story within (2013)

Story Within

Personal Essays on Genetics and Identity

Story Within
Amy Boesky, Amy Boesky
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Last edited by ImportBot
February 26, 2022 | History
An edition of The story within (2013)

Story Within

Personal Essays on Genetics and Identity

The contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it. People affected by genetic disease respond to such choices in varied and personal ways. These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what "health" is or whose life has value. They write hoping to expand conversations about genetics and identity--to deepen debate and generate questions. They or their families are affected by Huntington's disease, Alzheimer's disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia. All of their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal.

Publish Date
Language
English

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Edition Availability
Cover of: Story Within
Story Within: Personal Essays on Genetics and Identity
2013, Johns Hopkins University Press
in English
Cover of: The story within
The story within: personal essays on genetics and identity
2013
in English

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Book Details


The Physical Object

Pagination
280

ID Numbers

Open Library
OL37167669M
ISBN 13
9781421410975

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Better World Books record

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February 26, 2022 Created by ImportBot Imported from Better World Books record