MARC Record from harvard_bibliographic_metadata

LEADER: 02943cam a22003014a 4500
001 012015034-4
005 20091001093347.0
008 090123s2009 enka b 001 0 eng
010 $a 2009002176
020 $a9780754674511 (hbk. : alk. paper)
020 $a0754674517 (hbk. : alk. paper)
035 0 $aocn301798093
040 $aDLC$cDLC$dBTCTA$dYDXCP$dBWKUK$dBWK$dCDX$dDLC$dMH-L
050 00 $aK3611.G46$bD575 2009
082 00 $a344.04/196$222
245 00 $aDisclosure dilemmas :$bethics of genetic prognosis after the 'right to know/not to know' debate /$cedited by Christoph Rehmann-Sutter, Hansjakob Müller.
260 $aFarnham, Surrey, England ;$aBurlington, VT :$bAshgate Pub.,$cc2009.
300 $axvii, 275 p. :$bill. ;$c24 cm.
490 0 $aMedical law and ethics
500 $aIncludes bibliographical references and index.
505 0 $aThe right to know, and the right not to know : ten years on / Ruth Chadwick -- Genetic counseling : placing the room in context / Barbara Katz Rothman -- Genetic counselling : clinical settings and constraints / Hansjakob Müller -- Prevention of harmful false diagnosis versus threat by disclosure of an inheritable disease : a medical case / David Winkler and Philippe Lyrer -- Communication yes, but how : and what? Commentary to the case presented by David Winkler and Philippe Lyrer / Christoph Rehmann-Sutter -- The need for an ethics of kinship : decision stories and patients' context / Rouven Porz -- Testing for susceptibility genes : a cautionary tale / Margaret Lock -- 'If only I had (not) known that' : about risk-individualisation, chance-specification, and the loss of certainty of not-knowing / Tjeerd Tymstra -- The symbolic fallout of gene talk : replacing the person with manageable constructs / Silja Samerski -- Predictive genetic testing of adolescents at risk of inherited arrhythmic death / Jane Kaye, Michael Parker and Edward Blair -- How legal frameworks construct patterns of liability in genetic counseling : an international perspective / Daniel Wied, Susanne Listl, and Maximilian Seibl -- Responsibility towards relatives / Michael Steel -- Careful communication of 'bad news' : the cancer experience / Wolf Langewitz -- The responsibility of the truth-teller / Thomas Cerny -- Practising informed choice : decision making and prenatal risk assessment : the Danish experience / Nete Schwennesen, Lene Koch, and Mette Nordahl Svendsen -- Receiving and interpreting information : a joint enterprise / Jackie Leach Scully -- Without disclosure, no informed choice / Peter Miny -- Allowing agency : an ethical model for communicating personal genetic information / Christoph Rehmann-Sutter.
650 0 $aGenetic screening$xLaw and legislation.
650 0 $aGenetic counseling$xLaw and legislation.
650 0 $aMedical ethics.
700 1 $aRehmann-Sutter, Christoph,$d1959-
700 1 $aMüller, Hj.$q(Hansjakob)
988 $a20090626
906 $0DLC