MARC Record from marc_columbia

LEADER: 04124pam a22003734a 4500
001 4761415
005 20221103032828.0
008 030911s2004 nyu b 001 0 eng
010 $a 2003190051
020 $a0195123689 (alk. paper)
035 $a(OCoLC)ocm53038604
035 $a(NNC)4761415
035 $a4761415
040 $aDLC$cDLC$dYDX$dNNC-M$dOrLoB-B
042 $apcc
050 00 $aRD127$b.W45 2004
082 00 $a174/.29$222
100 1 $aWeir, Robert F.,$d1943-$0http://id.loc.gov/authorities/names/n80059951
245 14 $aThe stored tissue issue :$bbiomedical research, ethics, and law in the era of genomic medicine /$cRobert F. Weir, Robert S., Robert S. Olick, with Jeffrey C. Murray.
260 $aNew York :$bOxford University Press,$c2004.
300 $axvii, 339 pages ;$c25 cm
336 $atext$btxt$2rdacontent
337 $aunmediated$bn$2rdamedia
504 $aIncludes bibliographical references and indexes.
505 00 $gPt. I.$tFrom unquestioned traditional practices to a controversy about research, rights, and rewards -- $g1.$tUnprecedented cases, debatable changes, and new challenges -- $g2.$tConcerns about some common research practices -- $g3.$tThe controversy over stored tissues, research practices, and informed consent -- $g4.$tMolecular genetics : tissue samples in the laboratory -- $gPt. II.$tCurrent laws, policies, and recommendations -- $g5.$tRecommendations and policies in other countries -- $g6.$tThe federal regulations for human tissue research : summary and assessment -- $g7.$tThe larger legal framework for human tissue research : Moore and beyond -- $g8.$tThe NBAC report : recommendations and limitations -- $gPt. III.$tEthical, professional, and legal implications -- $g9.$tUpdating informed consent in the era of genomic medicine -- $g10.$tBeyond informed consent : other ethical issues and concerns -- $g11.$tAn agenda for the near future.
520 1 $a"Genetics research with stored human tissues provides many benefits and holds much promise. Yet how this critical research is conducted sometimes raises serious ethical, legal, and social concerns, and it is difficult to balance the promise of biomedical research with our time-honored commitments to individual choice in such fundamental matters as control over personal health information and the disposition of our bodily tissues." "Weir and Olick provide a analysis of this critical phase in the era of genomic medicine. While strongly supportive of the biomedical research enterprise, they develop a critique of many common research practices with banked tissues, DNA, and genetic data. Noting numerous examples of beneficial human tissue research, they focus on problematic research practices, controversial cases, and federal and institutional policies that limit the informed choices of patients and research participants. The authors offer a series of recommendations intended to limit the risk of inadequate informed consent to research for individuals, families, and groups, and to strengthen the bonds of trust between the research enterprise and the public upon which biomedical progress depends." "This book offers information plus recommendations that will be of keen interest to geneticists, other biomedical scientists, research institutions, policy makers, students, and others. It will serve as a clarion call to move beyond traditional policies and practices toward a richer understanding of partnership between patients and research participants and the biomedical research enterprise - a partnership for the benefit of all."--BOOK JACKET.
650 0 $aPreservation of organs, tissues, etc.$xMoral and ethical aspects.
650 12 $aOrgan Preservation.$0https://id.nlm.nih.gov/mesh/D009926
650 22 $aBioethics.$0https://id.nlm.nih.gov/mesh/D001675
650 22 $aMorals.$0https://id.nlm.nih.gov/mesh/D009014
650 22 $aJurisprudence.$0https://id.nlm.nih.gov/mesh/D007603
700 1 $aOlick, Robert S.$0http://id.loc.gov/authorities/names/nr98026651
700 1 $aMurray, Jeffrey C.$0http://id.loc.gov/authorities/names/n2003005528
852 00 $boff,hsl$hRD127$i.W45 2004