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MARC Record from marc_columbia

Record ID marc_columbia/Columbia-extract-20221130-015.mrc:31019122:3441
Source marc_columbia
Download Link /show-records/marc_columbia/Columbia-extract-20221130-015.mrc:31019122:3441?format=raw

LEADER: 03441cam a22004814a 4500
001 7093186
005 20221130205647.0
008 080125t20082008enk b 001 0 eng
010 $a 2008003427
015 $aGBA859376$2bnb
016 7 $a101464664$2DNLM
016 7 $a014596119$2Uk
020 $a9780754672555 (hardback : alk. paper)
020 $a0754672557 (hardback : alk. paper)
029 1 $aNLM$b101464664
029 1 $aAU@$b000042966131
035 $a(OCoLC)ocn223104423
035 $a(OCoLC)223104423
035 $a(NNC)7093186
035 $a7093186
040 $aDNLM/DLC$cDLC$dNLM$dUKM$dBWKUK$dYDXCP$dBWX$dCDX
042 $apcc
050 00 $aQH438.7$b.E836 2008
060 00 $a2008 N-818
060 10 $aQU 470$bE835 2008
082 00 $a174.2$222
245 00 $aEthical issues in governing biobanks :$bglobal perspectives /$cedited by Bernice Elger [and others].
260 $aAldershot, England ;$aBurlington, VT :$bAshgate Pub. Ltd.,$c[2008], ©2008.
300 $avi, 257 pages ;$c24 cm
336 $atext$btxt$2rdacontent
337 $aunmediated$bn$2rdamedia
504 $aIncludes bibliographical references and index.
505 0 $aBiobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron -- Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman -- Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno -- Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] -- Consent and use of samples / Bernice Elger -- Consent to research involving human biological samples obtained during medical care / Bernice Elger -- Collective consent / Agomoni Ganguli-Mitra -- Withdrawal of consent and destruction of samples / Bernice Elger -- Anonymization and coding / Bernice Elger -- Informing participants about research results / Andrea Boggio -- Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio -- Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio -- Benefit-sharing and remuneration / Agomoni Ganguli-Mitra -- Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio -- Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron -- Biobanks and genomic research : what shape the future? / Alex Capron.
650 0 $aHuman genetics$xDatabases$xMoral and ethical aspects.
650 0 $aHuman genetics$xDatabases$xLaw and legislation.
650 12 $aGenome, Human.$0https://id.nlm.nih.gov/mesh/D015894
650 22 $aConfidentiality.$0https://id.nlm.nih.gov/mesh/D003219
650 22 $aDatabases, Genetic$xethics.$0https://id.nlm.nih.gov/mesh/D030541Q000941
650 22 $aDatabases, Genetic$xlegislation & jurisprudence.$0https://id.nlm.nih.gov/mesh/D030541Q000331
650 22 $aGenetic Research$xethics.$0https://id.nlm.nih.gov/mesh/D036281Q000941
650 22 $aGenetics, Population$xethics.$0https://id.nlm.nih.gov/mesh/D005828Q000941
700 1 $aElger, Bernice S.,$d1964-$0http://id.loc.gov/authorities/names/no98126054
852 00 $boff,hsl$hQH438.7$i.E836 2008