MARC Record from marc_columbia

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020 $a0309447321
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035 $a(OCoLC)965804799
035 $a(OCoLC)ocn965804799
035 $a(NNC)12353195
040 $aNRC$beng$erda$cNRC
050 4 $aRA773.74$b.A47 2016
100 1 $aAlper, Joe,$erapporteur.
245 10 $aRelevance of health literacy to precision medicine :$bproceedings of a workshop /$cJoe Alper, rapporteur ; Roundtable on Health Literacy, Board on Population Health and Public Health Practice, Health and Medicine Division, the National Academies of Sciences, Engineering, Medicine.
264 1 $aWashington, DC :$bthe National Academies Press,$c[2016]
264 4 $c©2016.
300 $axx, 104 pages :$bcolor illustrations ;$c23 cm.
336 $atext$btxt$2rdacontent
337 $aunmediated$bn$2rdamedia
338 $avolume$bnc$2rdacarrier
504 $aIncludes bibliographical references (pages 83-87).
505 0 $aIntroduction -- Genetic literacy -- The intersection of health literacy and precision medicine -- Health liteacy in precision medicine research -- Communicating risk and uncertainty in the clinical setting -- Communicating with the public -- Reflections on the day -- References -- Appendix A: Workshop agenda -- Appendix B: Biographical sketches of workshop speakers, moderators, and reactors
520 1 $a"On January 20, 2015, President Obama announced the Precision Medicine Initiative (PMI) in his State of the Union address. The PMI, by developing new approaches for detecting, measuring, and analyzing a wide range of biomedical information including molecular, genomic, cellular, clinical, behavioral, physiological, and environmental parameters, is intended to enable a new era of medicine in which researchers, providers, and patients work together to develop individualized care. Part of this effort included the creation of a national, large-scale research participant group, or cohort. The PMI Cohort Program is aimed at extending precision medicine to many diseases, including both rare and common diseases such as diabetes, heart disease, Alzheimer's disease, obesity, and mental illnesses such as depression, bipolar disorder, and schizophrenia, by building a national research cohort of 1 million or more U.S. participants. An important challenge to assembling the PMI Cohort will be to reach individuals who are socioeconomically disadvantaged. Individuals who are socioeconomically disadvantaged have lower health literacy; often belong to racial, ethnic, and minority communities; and are often less likely to participate in research studies and biorepositories. To explore possible strategies and messaging designs, the Roundtable on Health Literacy formed an ad hoc committee charged with planning and conducting a 1-day public workshop on the intersection of health literacy and precision medicine. The workshop participants discussed a variety of topics including an overview of precision medicine and its potential, the relevance of health literacy to the success of precision medicine efforts, and perspectives and understanding of different groups, such as health care providers, consumers, and insurers. This publication summarizes the presentations and discussions from the workshop"--Publisher's description.
610 20 $aPrecision Medicine Initiative.
650 0 $aHealth literacy$zUnited States$vCongresses.
650 0 $aPersonalized medicine$zUnited States$vCongresses.
710 2 $aNational Academies of Sciences, Engineering, and Medicine (U.S.).$bRoundtable on Health Literacy,$esponsoring body.
711 2 $aRelevance of Health Literacy to Precision Medicine (Workshop)$d(2016 :$cWashington, D.C.),$jauthor.
776 08 $aAlper, Joe.$tRelevance of health literacy to precision medicine.$dWashington, DC : the National Academies Press, [2016]$w(OCoLC)962454795
852 00 $boff,sci$hRA773.74$i.A477 2016g