MARC Record from marc_columbia

LEADER: 07304cam a2201117 i 4500
001 15103179
005 20221119232902.0
006 m o d
007 cr |||||||||||
008 141203s2015 enka ob 001 0 eng d
035 $a(OCoLC)ocn897376753
035 $a(NNC)15103179
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019 $a958108144$a962126260$a1058439513$a1086541905$a1303516690
020 $a9781317584476$q(electronic bk.)
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024 7 $a10.4324/9781315741871$2doi
035 $a(OCoLC)897376753$z(OCoLC)958108144$z(OCoLC)962126260$z(OCoLC)1058439513$z(OCoLC)1086541905$z(OCoLC)1303516690
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072 7 $aHEA$x012000$2bisacsh
072 7 $aHEA$x020000$2bisacsh
072 7 $aMED$x004000$2bisacsh
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082 04 $a610.724$223
049 $aZCUA
245 04 $aThe public shaping of medical research :$bpatient associations, health movements and biomedicine /$cedited by Peter Wehling, Willy Viehöver, and Sophia Koenen.
246 30 $aPatient associations, health movements and biomedicine
264 1 $aLondon :$bRoutledge/Taylor & Francis Group,$c2015.
300 $a1 online resource (xviii, 290 pages) :$billustrations
336 $atext$btxt$2rdacontent
337 $acomputer$bc$2rdamedia
338 $aonline resource$bcr$2rdacarrier
490 1 $aRoutledge studies in the sociology of health and illness
504 $aIncludes bibliographical references and index.
505 0 $aPatient associations, health social movements and the public shaping of biomedical research: an introduction -- Part I: Empirical cases and theoretical perspectives. A seat at the table, "a lab of our own" and working with what we know now : how the U.S. environmental breast cancer movement shapes research / Lori Baralt -- Initiating and funding medical research on a rare disease : the approach of the German Cystic Fibrosis Association / Andreas Reimann -- Eurordis : empowering patients living with rare diseases to participate in biomedical knowledge production / Christel Nourissier, Monica Ensini and Maria Mavris -- The entanglement of scientific and political claims : towards a new form of patients' activism / Madeleine Akrich, Orla O'Donovan and Vololona Rabeharisoa -- Obesity, the alternative food movement, and complete streets : new forms of "patient" activism and the evolution of health social movements / Mercedes C. Lyson and Stephen Zavestoski -- Part II: Shifting contexts and new challenges. Autism, the Internet and medicalization / Peter Conrad and Catherine Tan -- A community fractured : Canada's breast cancer movement, pharmaceutical company funding, and science-related advocacy / Sharon Batt -- Beyond scientific controversies : scientific counterpublics, countervailing industries, and undone science / David J. Hess -- Interpellating patients as future users of biomedical technologies : the case of patient associations and stem cell research / Henriette Langstrup -- Patient organizations as biosocial communities? : conceptual clarifications and critical remarks / Thomas Lemke -- Part III: Democratizing biomedicine? The role of patient associations and health social movements. Changing contexts for science and society interaction : from deficit to dialogue, from dialogue to participation- and beyond? / Massimiano Bucchi -- The virtues (and some perils) of activist participation : the political and epistemic legitimacy of patient activism / Peter Wehling and Willy Viehöver -- The ethical legitimacy of patient organizations' involvement in politics and knowledge production : epistemic justice as a conceptual basis / Silke Schicktanz -- Conclusion : effects of and challenges to the public shaping of medical research / Willy Viehöver, Peter Wehling and Matthias Roche.
588 0 $aOnline resource; title from resource home page (ebrary, viewed November 24, 2015).
520 $aPatient organizations and social health movements offer one of the most important and illuminating examples of civil society engagement and participation in scientific research and research politics. Influencing the research agenda, and initiating, funding and accelerating the development of diagnostic tools, effective therapies and appropriate health-care for their area of interest, they may champion alternative, sometimes controversial, programs or critique dominant medical paradigms. Some movements and organizations advocate for medical recognition of contested illnesses, as with fibromyalg.
546 $aEnglish.
650 0 $aMedicine$xResearch.
650 0 $aBiology$xResearch.
650 0 $aPublic opinion.
650 0 $aPatient advocacy.
650 0 $aPatient participation.
650 12 $aBiomedical Research
650 12 $aPublic Opinion
650 22 $aPatient Participation
650 22 $aPatient Advocacy
650 6 $aMédecine$xRecherche.
650 6 $aBiologie$xRecherche.
650 6 $aOpinion publique.
650 6 $aPatients$xDroits.
650 6 $aParticipation des patients.
650 7 $aHEALTH & FITNESS$xHolism.$2bisacsh
650 7 $aHEALTH & FITNESS$xReference.$2bisacsh
650 7 $aMEDICAL$xAlternative Medicine.$2bisacsh
650 7 $aMEDICAL$xAtlases.$2bisacsh
650 7 $aMEDICAL$xEssays.$2bisacsh
650 7 $aMEDICAL$xFamily & General Practice.$2bisacsh
650 7 $aMEDICAL$xHolistic Medicine.$2bisacsh
650 7 $aMEDICAL$xOsteopathy.$2bisacsh
650 7 $aBiology$xResearch.$2fast$0(OCoLC)fst00832448
650 7 $aMedicine$xResearch.$2fast$0(OCoLC)fst01015059
650 7 $aPatient advocacy.$2fast$0(OCoLC)fst01055001
650 7 $aPatient participation.$2fast$0(OCoLC)fst01055025
650 7 $aPublic opinion.$2fast$0(OCoLC)fst01082785
650 7 $aBiomedizin$2gnd
650 7 $aBürgerbeteiligung$2gnd
650 7 $aForschung$2gnd
650 7 $aMedizinsoziologie$2gnd
650 7 $aMeinungsbildung$2gnd
650 7 $aPatient$2gnd
650 7 $aPolitische Willensbildung$2gnd
650 7 $aSoziale Bewegung$2gnd
700 1 $aWehling, Peter,$d1954-$eeditor.
700 1 $aViehöver, Willy,$eeditor.
700 1 $aKoenen, Sophia,$eeditor.
776 08 $iPrint version:$tPublic shaping of medical research.$dAbingdon, Oxon ; New York, NY : Routledge, 2015$z9780415858236$w(DLC) 2014021196$w(OCoLC)881019540
830 0 $aRoutledge studies in the sociology of health and illness.
856 40 $uhttp://www.columbia.edu/cgi-bin/cul/resolve?clio15103179$zTaylor & Francis eBooks
852 8 $blweb$hEBOOKS