MARC Record from Library of Congress

LEADER: 02965cam a22004094a 4500
001 2008003427
003 DLC
005 20090901084508.0
008 080125s2008 enk b 001 0 eng
010 $a 2008003427
015 $aGBA859376$2bnb
016 7 $a101464664$2DNLM
016 7 $a014596119$2Uk
020 $a9780754672555 (hardback : alk. paper)
020 $a0754672557 (hardback : alk. paper)
035 $a(OCoLC)223104423
040 $aDNLM/DLC$cDLC$dNLM$dUKM$dBWKUK$dYDXCP$dBWX$dCDX$dDLC
042 $apcc
050 00 $aQH438.7$b.E836 2008
060 00 $a2008 N-818
060 10 $aQU 470$bE835 2008
082 00 $a174.2$222
245 00 $aEthical issues in governing biobanks :$bglobal perspectives /$cedited by Bernice Elger ... [et al.].
260 $aAldershot, England ;$aBurlington, VT :$bAshgate Pub. Ltd.,$cc2008.
300 $avi, 257 p. ;$c24 cm.
504 $aIncludes bibliographical references and index.
505 0 $aBiobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron -- Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman -- Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno -- Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] -- Consent and use of samples / Bernice Elger -- Consent to research involving human biological samples obtained during medical care / Bernice Elger -- Collective consent / Agomoni Ganguli-Mitra -- Withdrawal of consent and destruction of samples / Bernice Elger -- Anonymization and coding / Bernice Elger -- Informing participants about research results / Andrea Boggio -- Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio -- Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio -- Benefit-sharing and remuneration / Agomoni Ganguli-Mitra -- Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio -- Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron -- Biobanks and genomic research : what shape the future? / Alex Capron.
650 0 $aHuman genetics$xDatabases$xMoral and ethical aspects.
650 0 $aHuman genetics$xDatabases$xLaw and legislation.
650 12 $aGenome, Human.
650 22 $aConfidentiality.
650 22 $aDatabases, Genetic$xethics.
650 22 $aDatabases, Genetic$xlegislation & jurisprudence.
650 22 $aGenetic Research$xethics.
650 22 $aGenetics, Population$xethics.
700 1 $aElger, Bernice.
856 41 $3Table of contents only$uhttp://www.loc.gov/catdir/toc/ecip089/2008003427.html