Record ID | marc_loc_2016/BooksAll.2016.part36.utf8:160046812:1383 |
Source | Library of Congress |
Download Link | /show-records/marc_loc_2016/BooksAll.2016.part36.utf8:160046812:1383?format=raw |
LEADER: 01383cam a2200313 a 4500
001 2009052750
003 DLC
005 20150129081025.0
008 100106s2010 nyu 000 0ceng
010 $a 2009052750
015 $aGBB031069$2bnb
016 7 $a015494727$2Uk
020 $a9781557049100 (hardcover : alk. paper)
020 $a1557049106 (hardcover : alk. paper)
035 $a(OCoLC)ocn449858131
040 $aDLC$cDLC$dYDX$dIK2$dUKM$dVUE$dDLC
043 $an-us---
050 00 $aRJ399.G58$bC76 2010
082 00 $a616.3/99200922$aB$222
100 1 $aCrowley, John F.,$d1967-
245 10 $aChasing miracles :$bthe Crowley family journey of strength, hope, and joy /$cJohn F. Crowley with Ken Kurson.
250 $a1st ed.
260 $aNew York :$bNewmarket Press,$cc2010.
300 $a223 p. ;$c21 cm.
505 0 $aTrust and faith -- Never, never, never quit -- You can't do it alone -- It's bigger than you -- Risk and innovation -- Set a vision and dream big -- Keep perspective -- Our mortality makes us special -- The bearable uniqueness of being.
520 $aPresents the story of John Crowley and his family as they deal with the challenges of two children in the family having Pompe disease, a rare genetic disorder.
600 30 $aCrowley family.
650 0 $aGlycogen storage disease type II$xPatients$zUnited States$vBiography.
700 1 $aKurson, Ken.