MARC Record from Library of Congress

LEADER: 03358cam a22003858i 4500
001 2014021196
003 DLC
005 20150228083011.0
008 140602s2015 enk b 000 0 eng
010 $a 2014021196
020 $a9780415858236 (hbk)
020 $z9781315741871 (ebk)
035 $a(DNLM)101633772
040 $aDNLM/DLC$cDLC$erda$dDLC
042 $apcc
050 00 $aR852$b.P83 2015
060 10 $aW 20.5
082 00 $a610.72/4$223
245 04 $aThe public shaping of medical research :$bpatient associations, health movements and biomedicine /$cedited by Peter Wehling, Willy Viehöver, and Sophia Koenen.
264 1 $aLondon :$aNew York :$bRoutledge, Taylor & Francis Group,$c2015.
300 $axviii, 290 pages :$billustrations ;$c24 cm.
336 $atext$2rdacontent
337 $aunmediated$2rdamedia
338 $avolume$2rdacarrier
490 1 $aRoutledge studies in the sociology of health and illness
504 $aIncludes bibliographical references and index.
505 0 $aA seat at the table, "a lab of our own" and working with what we know now : how the U.S. environmental breast cancer movement shapes research / Lori Baralt -- Initiating and funding medical research on a rare disease : the approach of the German Cystic Fibrosis Association / Andreas Reimann -- Eurordis : empowering patients living with rare diseases to participate in biomedical knowledge production / Christel Nourissier, Monica Ensini and Maria Mavris -- The entanglement of scientific and political claims : towards a new form of patients' activism / Madeleine Akrich, Orla O'Donovan and Vololona Rabeharisoa -- Obesity, the alternative food movement, and complete streets : new forms of "patient" activism and the evolution of health social movements / Mercedes C. Lyson and Stephen Zavestoski -- Autism, the Internet and medicalization / Peter Conrad and Catherine Tan -- A community fractured : Canada's breast cancer movement, pharmaceutical company funding, and science-related advocacy / Sharon Batt -- Beyond scientific controversies : scientific counterpublics, countervailing industries, and undone science / David J. Hess -- Interpellating patients as future users of biomedical technologies : the case of patient associations and stem cell research / Henriette Langstrup -- Patient organizations as biosocial communities? : conceptual clarifications and critical remarks / Thomas Lemke -- Changing contexts for science and society interaction : from deficit to dialogue, from dialogue to participation- and beyond? / Massimiano Bucchi -- The virtues (and some perils) of activist participation : the political and epistemic legitimacy of patient activism / Peter Wehling and Willy Viehöver -- The ethical legitimacy of patient organizations' involvement in politics and knowledge production : epistemic justice as a conceptual basis / Silke Schicktanz -- Conclusion : effects of and challenges to the public shaping of medical research / Willy Viehöver, Peter Wehling and Matthias Roche.
650 12 $aBiomedical Research.
650 12 $aPublic Opinion.
650 22 $aPatient Advocacy.
650 22 $aPatient Participation.
700 1 $aWehling, Peter,$d1954-$eeditor.
700 1 $aViehöver, Willy,$eeditor.
700 1 $aKoenen, Sophia,$eeditor.
830 0 $aRoutledge studies in the sociology of health and illness.