MARC Record from Library of Congress

LEADER: 02175nam a22003618a 4500
001 2008003427
003 DLC
005 20080411092000.0
008 080125s2008 enk b 001 0 eng
035 $a(DNLM)101464664
010 $a 2008003427
020 $a9780754672555 (hardback : alk. paper)
020 $a0754672557 (hardback : alk. paper)
040 $aDNLM/DLC$cDLC$dDLC
042 $apcc
050 00 $aQH438.7$b.E836 2008
060 10 $aQU 470$bE835 2008
082 00 $a174.2$222
245 04 $aThe ethics and regulation of human genetic databases :$bglobal perspectives /$cedited pby Bernice Elger ... [et al.].
260 $aAldershot, England ;$aBurlington, VT :$bAshgate Pub. Ltd.,$cc2008.
263 $a0807
300 $ap. ;$ccm.
504 $aIncludes bibliographical references and index.
505 0 $aBiobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron -- Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman -- Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno -- Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] -- The results of the interviews: consensus and unresolved controversies among international and US experts concerning research involving genetic databases / Bernice Elger, Agononi Ganguli-Mitra, Andrea Boggio -- Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron -- Biobanks and genomic research: what shape the future? / Alex Capron.
650 0 $aHuman genetics$xDatabases$xMoral and ethical aspects.
650 0 $aHuman genetics$xDatabases$xLaw and legislation.
650 12 $aGenome, Human.
650 22 $aConfidentiality.
650 22 $aDatabases, Genetic$xethics.
650 22 $aDatabases, Genetic$xlegislation & jurisprudence.
650 22 $aGenetic Research$xethics.
650 22 $aGenetics, Population$xethics.
700 1 $aElger, Bernice.