MARC Record from Library of Congress

LEADER: 03471cam a22004574a 4500
001 2009030145
003 DLC
005 20100322160614.0
008 090729s2009 enka b 001 0 eng
010 $a 2009030145
015 $aGBA981167$2bnb
016 7 $a101511864$2DNLM
016 7 $a015351219$2Uk
020 $a9780754678250 (hardcover)
020 $a0754678253 (hardcover)
020 $a9780754696193 (ebk)
020 $a0754696197 (ebk)
035 $a(OCoLC)ocn429472462
040 $aDNLM/DLC$cDLC$dYDX$dNLM$dUKM$dBTCTA$dYDXCP$dBWX$dDLC
042 $apcc
050 00 $aRD127$b.P76 2009
060 00 $a2010 C-154
060 10 $aQU 23$bP957 2009
082 00 $a362.17/83$222
082 00 $a576.50752$222
245 00 $aPrinciples and practice in biobank governance /$cedited by Jane Kaye, Mark Stranger.
260 $aFarnham, Surrey ;$aBurlington, VT :$bAshgate,$cc2009.
300 $axxii, 292 p. :$bill. ;$c24 cm.
504 $aIncludes bibliographical references and index.
505 0 $aWhat benefit sharing arrangements do people want from biobanks? A survey of public opinion in Australia / Dianne Nicol and Christine Critchley -- Reconsidering altruism, introducing reciprocity, and empowerment in the governance of biobanks / Nadja Kanellopoulou -- From benefit sharing to power sharing : partnership governance in population genomics research / David E. Winickoff -- Co-determination of donors in biobanks / Lukas Gundermann and Ulrich Stockter -- Developing an appropriate consent model for biobanks : in defence of "broad" consent / Margaret Otlowski -- Consent by research ethics committees : the new law on biomedical research in Spain / Antonio Casado da Rocha and Ismael Etxeberria Agiriano -- Addressing the ethical objections to pediatric biobanks / Kristien Hens and Kris Dierickx -- Deciding whether to participate in a biobank : the concerns of healthy volunteers / R. Jean Cadigan and Arlene M Davis -- Privacy interests in biobanking : a preliminary view on a European perspective -- David Townend ... [et al.] -- Feeding back significant findings to participants and relatives / Loane Skene -- Ensuring participant privacy in networked biobanks / Atieh Zarabzadeh ... [et al.] -- hSERN : a tool to help researchers with the legal requirements of cross-border exchange of biological material / Emmanuelle Rial-Sebbag ... [et al.] -- Biobanking networks : what are the governance challenges? / Jane Kaye -- Potential conflicts in governance mechanisms used in population biobanks / Karine Bédard ... [et al.] -- UK biobank ethics and governance council : an exercise in added value / Martin Richards, Adrienne Hunt and Graeme Laurie -- The end of individual control over health information : promoting fair information practices and the governance of biobank research / Trudo Lemmens and Lisa Austin -- From public inquiry to policy : biobanks, population genetics and the public interest / David Weisbrot.
650 0 $aTissue banks$xManagement.
650 0 $aBiobanks$xManagement.
650 0 $aTissues$xCollection and preservation$xGovernment policy.
650 0 $aBiological specimens$xCollection and preservation$xGovernment policy.
650 0 $aProcurement of organs, tissues, etc.$xInternational cooperation.
650 0 $aBioethics.
650 12 $aBiological Specimen Banks$xstandards.
650 22 $aClinical Governance.
650 22 $aPublic Policy.
700 1 $aKaye, Jane,$d1962-
700 1 $aStranger, Mark.