| Record ID | marc_openlibraries_sanfranciscopubliclibrary/sfpl_chq_2018_12_24_run06.mrc:192468028:3877 |
| Source | marc_openlibraries_sanfranciscopubliclibrary |
| Download Link | /show-records/marc_openlibraries_sanfranciscopubliclibrary/sfpl_chq_2018_12_24_run06.mrc:192468028:3877?format=raw |
LEADER: 03877cam a22005778i 4500
001 on1016939845
003 OCoLC
005 20181126142650.0
008 180609s2018 nyua 000 0aeng c
010 $a2018011395
020 $a9781250135285$q(hardcover)
020 $a1250135281$q(hardcover)
035 $a(OCoLC)1016939845
040 $aLBSOR/DLC$beng$erda$cDLC$dOCLCO$dON8$dSFR$dUtOrBLW
042 $apcc
049 $aSFRA
050 00 $aRJ456.C9$bM87 2018
082 00 $a618.923/72$223
092 $a618.9237$bM949s
100 1 $aMurnaghan, Janet,$eauthor.
245 10 $aSaving Sarah /$cJanet Murnaghan.
250 $aFirst edition.
264 1 $aNew York :$bSt. Martin's Press,$c2018.
300 $a246 pages, 16 unnumbered pages of plates :$bcolor illustrations ;$c25 cm
336 $atext$btxt$2rdacontent
337 $aunmediated$bn$2rdamedia
338 $avolume$bnc$2rdacarrier
520 $a"When her daughter desperately needed a lung transplant to survive, Janet Murnaghan rallied against the outdated restrictions in healthcare that would limit her daughter's options. Sarah had been dying of cystic fibrosis since the day she was born. The disease quickly ravaged her lungs and little body bit-by-bit. Fragile and frail, she had only weeks to live, when her mom realized the reality of Sarah's situation: transplant laws, restricting access to lungs based on arbitrary age restrictions, meant Sarah's options were limited. The injustice of her daughter's fate spurred Janet to start a public battle against outdated health care regulations and a battle to save Sarah's life. Janet transformed her pain and desperation into a voice for Sarah and other kids using social media as her megaphone with friends and family as Sarah's warriors. How does a family navigate catastrophic illness and life in a hospital, while still maintaining a sense of normalcy? Saving Sarah is a story of hope and courage, and a mother's determination to never give up. It's also the story of how a family--Janet and her husband Fran have three other children, one adopted from Ghana--reacts and adjusts when one of its members is in ongoing crisis"--$cProvided by publisher.
600 10 $aMurnaghan, Janet.
600 10 $aMurnaghan, Sarah.
600 10 $aMurnaghan, Janet$xFamily.
650 0 $aCystic fibrosis in children.
650 0 $aParents of terminally ill children$vBiography.
650 0 $aTerminally ill children$vBiography.
650 0 $aTransplantation of organs, tissues, etc. in children.
650 0 $aFamilies of the terminally ill.
655 7 $aAutobiographies.$2lcgft
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