The Ethics and Governance of Human Genetic Databases

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Last edited by ImportBot
November 19, 2022 | History

The Ethics and Governance of Human Genetic Databases

The Medical Biobank of Umea in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases.

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English

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Cover of: The Ethics and Governance of Human Genetic Databases
The Ethics and Governance of Human Genetic Databases
2007, Cambridge University Press
eBook in English

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eBook

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Open Library
OL24316559M
ISBN 13
9780511282584, 9780511290909
OverDrive
C9E278DD-9EDE-47B8-B9CD-A795F23FC7A4

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Download catalog record: RDF / JSON
November 19, 2022 Edited by ImportBot import existing book
July 22, 2019 Edited by MARC Bot remove fake subjects
July 1, 2010 Created by ImportBot new OverDrive book