An edition of Disclosure dilemmas
(2009)
Disclosure dilemmas
ethics of genetic prognosis after the 'right to know/not to know' debate
by Christoph Rehmann-Sutter
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Disclosure dilemmas: ethics of genetic prognosis after the 'right to know/not to know' debate
2009, Ashgate Pub.
in English
0754674517 9780754674511
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Book Details
Table of Contents
The right to know and the right not to know, ten years on / Ruth Chadwick
Genetic counseling : placing the room in context / Barbara Katz Rothman
Genetic counselling : clinical settings and constraints / Hansjakob Müller
Prevention of harmful false diagnosis versus threat by disclosure of an inheritable disease : a medical case / David Winkler and Philippe Lyrer
Communication yes, but how and what : commentary to the case presented by David Winkler and Philippe Lyrer / Christoph Rehmann-Sutter
The need for an ethics of kinship : decision stories and patients' context / Rouven Porz
Testing for susceptibility genes : a cautionary tale / Margaret Lock
"If only I had (not) known that" about risk-individualisation, chance-specification, and the loss of certainty of not-knowing / Tjeerd Tymstra
Contribution to disclosure dilemmas in genetic counseling : the symbolic fallout of gene talk / Silja Samerski
Predictive genetic testing of adolescents at risk of inherited arrhythmic death / Jane Kaye, Michael Parker and Edward Blair
How legal frameworks construct patterns of liability in genetic counseling : an international perspective / Daniel Wied, Susanne Listl and Maximilian Seibl
Responsibility towards relatives / Michael Steel
Careful communication of "bad news" : the cancer experience / Wolf Langewitz
The responsibility of the truth-teller / Thomas Cerny
Practising informed choice : decision making and prenatal risk assessment : the Danish experience / Nete Schwennesen, Lene Koch and Mette Nordahl Svendsen
Receiving and interpreting information : a joint enterprise / Jackie Leach Scully
Without disclosure, no informed choice / Peter Miny
Allowing agency : an ethical model for communicating personal genetic information / Christoph Rehmann-Sutter.
Edition Notes
Includes bibliographical references and index.
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| September 14, 2021 | Edited by ImportBot | import existing book |
| December 22, 2020 | Edited by MARC Bot | import existing book |
| February 12, 2019 | Created by MARC Bot | import existing book |