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Subjects
Biomedical Research, Public Opinion, Patient Advocacy, Patient Participation, Medicine, research, Physician and patient, Medicine, Research, Biology, Médecine, Recherche, Biologie, Opinion publique, Patients, Droits, Participation des patients, HEALTH & FITNESS, Holism, Reference, MEDICAL, Alternative Medicine, Atlases, Essays, Family & General Practice, Holistic Medicine, Osteopathy, Biomedizin, Bürgerbeteiligung, Forschung, Medizinsoziologie, Meinungsbildung, Patient, Politische Willensbildung, Soziale BewegungEdition | Availability |
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The public shaping of medical research: patient associations, health movements and biomedicine
2015, Routledge, Taylor & Francis Group, Routledge
in English
0415858232 9780415858236
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Public Shaping of Medical Research: Patient Associations, Health Movements and Biomedicine
2014, Taylor & Francis Group
in English
1317584457 9781317584452
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Public Shaping of Medical Research: Patient Associations, Health Movements and Biomedicine
2014, Taylor & Francis Group
in English
1317584473 9781317584476
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Public Shaping of Medical Research: Patient Associations, Health Movements and Biomedicine
2014, Taylor & Francis Group
in English
1317584465 9781317584469
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Book Details
Table of Contents
A seat at the table, "a lab of our own" and working with what we know now : how the U.S. environmental breast cancer movement shapes research / Lori Baralt
Initiating and funding medical research on a rare disease : the approach of the German Cystic Fibrosis Association / Andreas Reimann
Eurordis : empowering patients living with rare diseases to participate in biomedical knowledge production / Christel Nourissier, Monica Ensini and Maria Mavris
The entanglement of scientific and political claims : towards a new form of patients' activism / Madeleine Akrich, Orla O'Donovan and Vololona Rabeharisoa
Obesity, the alternative food movement, and complete streets : new forms of "patient" activism and the evolution of health social movements / Mercedes C. Lyson and Stephen Zavestoski
Autism, the Internet and medicalization / Peter Conrad and Catherine Tan
A community fractured : Canada's breast cancer movement, pharmaceutical company funding, and science-related advocacy / Sharon Batt
Beyond scientific controversies : scientific counterpublics, countervailing industries, and undone science / David J. Hess
Interpellating patients as future users of biomedical technologies : the case of patient associations and stem cell research / Henriette Langstrup
Patient organizations as biosocial communities? : conceptual clarifications and critical remarks / Thomas Lemke
Changing contexts for science and society interaction : from deficit to dialogue, from dialogue to participation- and beyond? / Massimiano Bucchi
The virtues (and some perils) of activist participation : the political and epistemic legitimacy of patient activism / Peter Wehling and Willy Viehöver
The ethical legitimacy of patient organizations' involvement in politics and knowledge production : epistemic justice as a conceptual basis / Silke Schicktanz
Conclusion : effects of and challenges to the public shaping of medical research / Willy Viehöver, Peter Wehling and Matthias Roche.
Edition Notes
Includes bibliographical references and index.
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