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Subjects
Biomedical Research, Public Opinion, Patient Advocacy, Patient Participation, Medicine, research, Public opinion, Patient advocacy, Physician and patient, Medicine, Research, Biology, Patient participation, Médecine, Recherche, Biologie, Opinion publique, Patients, Droits, Participation des patients, HEALTH & FITNESS, Holism, Reference, MEDICAL, Alternative Medicine, Atlases, Essays, Family & General Practice, Holistic Medicine, Osteopathy, Biomedizin, Bürgerbeteiligung, Forschung, Medizinsoziologie, Meinungsbildung, Patient, Politische Willensbildung, Soziale BewegungEdition | Availability |
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The public shaping of medical research: patient associations, health movements and biomedicine
2015, Routledge, Taylor & Francis Group, Routledge
in English
0415858232 9780415858236
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Public Shaping of Medical Research: Patient Associations, Health Movements and Biomedicine
2014, Taylor & Francis Group
in English
1317584465 9781317584469
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Public Shaping of Medical Research: Patient Associations, Health Movements and Biomedicine
2014, Taylor & Francis Group
in English
1317584473 9781317584476
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Book Details
Table of Contents
A seat at the table, "a lab of our own" and working with what we know now : how the U.S. environmental breast cancer movement shapes research / Lori Baralt
Initiating and funding medical research on a rare disease : the approach of the German Cystic Fibrosis Association / Andreas Reimann
Eurordis : empowering patients living with rare diseases to participate in biomedical knowledge production / Christel Nourissier, Monica Ensini and Maria Mavris
The entanglement of scientific and political claims : towards a new form of patients' activism / Madeleine Akrich, Orla O'Donovan and Vololona Rabeharisoa
Obesity, the alternative food movement, and complete streets : new forms of "patient" activism and the evolution of health social movements / Mercedes C. Lyson and Stephen Zavestoski
Autism, the Internet and medicalization / Peter Conrad and Catherine Tan
A community fractured : Canada's breast cancer movement, pharmaceutical company funding, and science-related advocacy / Sharon Batt
Beyond scientific controversies : scientific counterpublics, countervailing industries, and undone science / David J. Hess
Interpellating patients as future users of biomedical technologies : the case of patient associations and stem cell research / Henriette Langstrup
Patient organizations as biosocial communities? : conceptual clarifications and critical remarks / Thomas Lemke
Changing contexts for science and society interaction : from deficit to dialogue, from dialogue to participation- and beyond? / Massimiano Bucchi
The virtues (and some perils) of activist participation : the political and epistemic legitimacy of patient activism / Peter Wehling and Willy Viehöver
The ethical legitimacy of patient organizations' involvement in politics and knowledge production : epistemic justice as a conceptual basis / Silke Schicktanz
Conclusion : effects of and challenges to the public shaping of medical research / Willy Viehöver, Peter Wehling and Matthias Roche.
Edition Notes
Includes bibliographical references and index.
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